The National Health Service of the UK (NHS)? They run all health services in the UK and are government owned & controlled, surely they would be credible?
Here’s an offering from one part of the NHS posted on 17th November 2017. It looks like an ad sponsored by Big Food. Imagine the outcry if Coca-Cola DID run an ad like this! This is misleading and just plain WRONG. Potatoes contain carbs but it is not simple sugar and the metabolic and nutritional impact is WAY different from that of Coke or orange juice (which looks surprisingly low in sugar in that pic to me). This tweet-a picture of a display the diabetes nurses of the NHS took to a local shopping centre is so wrong, so potentially damaging and so misleading, I am beyond words.(Just kidding I can nearly always find the words to rant.)
Despite initially defending the tweet for quite some time, the West Suffolk NHS did delete it but I’m just leaving it here for the next time somebody starts dissing people with diabetes sharing health information on line.* Get your own houses in order first!
*West Suffolk NHS are by no means the only “credible” organisation disseminating misleading information. Health information is complex and doesn’t lend itself well to sound bytes and tweets. The sooner public health promotion officers realise this the better.
So it was Thursday morning, my pump reservoir was empty but when I went to refill it, I found the button I needed to press wasn’t working. I pressed harder, I gave it a little break and put it in a cool place. Alas no, my very out of warranty pump had finally let me down.
Time and again I find myself nodding at conferences or lectures when I hear a “patient’s” story of how the internet has or does make a huge difference to their quality of life/management of a medical condition or disease and its treatments. So it was again as I listened to e-patient Dave who told his story of engagement with the healthcare system following his diagnosis with stage 4 renal cancer.
Dave’s basic request “let patients help” seems unassuming enough and his definition of ’empowerment’ also seems like a modest aspiration. Continue reading →
Before I attended ADS-ADEA’s Annual Scientific Meeting I did a little survey of what people with diabetes were most interested in hearing about at conferences. As the survey was largely completed by my friends in the D world, it is unsurprising that they were almost entirely type 1s and most had had diabetes for at least 20 years. The topics of most interest were new technology, research with only a few more saying stuff that was relevant to life with D now as opposed to the cure and psychosocial issues. Many people also said the main benefit to them of attending D conferences was the opportunity to socialise with other people with diabetes.
So here’s my best effort at rounding up the categories of most interest from ADS-ADEA 2017:
Do you hear any sensible person saying things like
“Don’t look at any television news/read the newspapers or news magazines because they’re full of false information and negativity.” or
“I never go to parties or social gatherings because they’re full of negative people or somebody might say something that’s untrue to me.”
No? Funny that neither do I. Of course the simple and obvious answer to comments like that is to choose your media source and/or your social events more carefully and be discerning about what news or information you view as credible. Continue reading →
It’s always great when a piece of research confirms what you know to be true but others have doubted. It was super good timing when I came across this great finding published just a couple of weeks ago in the Journal of Internet Medical Research, 2017, August 17 19 (8):e 280
Engaged patients increase information flow, expand propagation and deepen engagement in the conversation of tweets compared to physicians and scientists.
Actually I have no idea why I have diabetes. If I really knew exactly why type 1 occurs I’d be publishing in the BMJ or the NEJM, I just wanted to talk about the language of being a diabetic as opposed to a person with diabetes. Continue reading →