Diabetesphere: Language,Roses, Empowerment & Politics

Me & e-patient Dave DeBronkart!

Every so often it’s good just to take stock of what’s going on in the diabetes world (and wider health landscape) and shine a spotlight on the good. So here’s an assortment of noteworthy things, please let me know of others.

1. The Language of Complications

I’ve blogged about complications and blame , before. It’s good to see Grumps and Renza getting a piece on this-specifically the ramifications of complications and language into the British Medical journal-way to go guys!

Read it here

2.Patient Experience, Empowerment and Engagement

I’m a huge fan of Dave DeBronkhart’s, (aka epatient Dave) work in promoting the value of the internet and patient’s sharing knowledge.

Dave asks “How can it be that the most useful and relevant and up-to-the-minute information can exist outside of traditional channels?”

Check out his slide deck from #DIAEurope2019 on why the current paradigm of the “patient” is broken and what we can do about it.

https://www.slideshare.net/ePatientDave/patient-experience-empowerment-engagement-a-business-leaders-view

3.Type 1 and Other Autoimmune Conditions

Some trivia, apparently being female and having a later age onset of type 1 diabetes (30+) makes you more likely to develop additional autoimmune diseases. I guess I”m just the exception that proves the rule, diagnosed with type 1 at the tender age of 1year and 4 months and Hashimotos (hypothyroidism) at 6 (had been severely hypothyroid for some time but paed Endo missed it.  https://themighty.com/2019/02/type-1-diabetes-study-autoimmune-disease-age-diagnosis/

4.Politics

For Aussies, it has been interesting to see both the Government and Opposition make specific commitments to type 1 diabetes in the lead up to the next election. Kudos to JDRF who I think have been the leaders, as well as the type 1 community in general who’ve stepped up to make politicians aware of type 1 and of how important this issue is to us. If you’re on social media, simple things like thanking politicians on their Fbook pages for their commitments keeps the pressure on.

5.Spare a Rose

It’s shocking that almost 100 years since a treatment was found to prevent the slow, painful death of those with type 1 diabetes, children are still dying because they can’t access this life saving medication.  Spare a Rose is a fundraising initiative, that suggests on Valentine’s Day, you donate the cost of at least one rose to Life for a Child.

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