Highlights of the Roche Educators Day, which is part of #ADSADEA2017:
It is really encouraging to see 100s of Diabetes Educators attending the conference. I am struck by how passionate many of them are and appreciate more their dedication to helping their patients in the face of a health system that is rigid, puts numerous barriers in their way, not least of which is funding and seems to work in neither the patient nor the HCP’s interests.
There were panels and presenters from most of the stakeholder groups, D educators of course, endocrinologists, GPS, people with diabetes and pharma and device companies, DA and ADEA staff. It strikes me that we should look hard to find policy areas in which we are united. As I speak to others people with diabetes here I am again reminded of the woeful care we receive from non-diabetes specialist hospital staff. I believe if ADEA and people with diabetes got together to lobby for an increased involvement for CDEs to manage inpatients on insulin (with increased staff numbers as well) and to educate the HCPs in hospitals then outcomes would surely be improved.
Diabetes Australia launched a position statement on glucose self-monitoring for people with type 1 and type 2. I haven’t had an opportunity to read it in detail but it’s good to see they support the subsidisation of flash monitoring and the extension of CGM funding to those over the age of 21 based on clinical need. Much of the rest of the document would be very useful I think to use with HCPs who try to limit your access to test strips, tell you you are testing too much etc. Its aim is to support people with diabetes to access what they need. So this is encouraging.
THere was interesting data on the impact of fat and protein on blood glucose levels. It is, as well all know complex, essentially evidence shows that protein will increase blood sugar levels in the presence or absence of carbohydrate, fat will only increase BG if eaten with carbs (so you tend to get a higher and later rise when you include fat with your carbs). I did tweet the pertinent slides, I’ll try to put them up on my carb counting adventures page as well. There are some guidelines on bolusing for protein and carbs. A word of warning though, the use of algorithms to bolus for proteins did lead to more hypoglycaemia and there are weight issues to consider around this as well.
Language was a big topic, with Renza Scibilia and Jane Speight doing an excellent presentation about the impact of the words we choose to shape people’s thoughts and attitudes. (I still say being a diabetic is ok 🙂 ) but I 100% agree that words like “test” “control”, “fail” and “compliance” are unhelpful and misleading about the reality of diabetes.
Models of care was another big topic. Essentially this is about which HCP you see where for your D and how they work together or don’t. Frankly I was struck by how behind diabetes is in this area compared to cancer (I worked for a cancer organisation in the early 2000s). As this topic was discussed it felt like diabetes was still a cottage industry. More work needs to be done on which models are most cost effective and optimal for the pwd and the bureaucracy and funding models need to support this. This is another big area where unity amongst the D orgs, the HCPs and pwd could do so much I believe.
There will be more blogs as I process all this including how upset I was when a person with diabetes totally dissed ‘the internet”. That hurt, it’s like she insulted my family. This community of which I am part and that has provided me with so much information, laughter, shoulders to cry on , friendship and I hope I’ve reciprocated was dismissed as “a playground for people who hate diabetes”and being totally “negative’. Not everyone is going to want or perhaps need the #DOC but it struck me that those comments were the most negative thing I’d heard all day about anything (a bit ironic really), fine if you don’ t want to take part that’s no big deal but it was quite rude as she sat alongside 3 Diabetes social media doyennes on a panel (Renza, Frank and Ash).
Agh, it’s now 6.30am and I need to go to breakfast so I can be all ready for another intense day!
Thanks to Roche for allowing me to attend the day and to Diabetes Australia for covering my costs to attend the conference.
Please do look out for the hashtag #ADSADEA2017 and #DApeoplesvoice on twitter and Facebook as we tweet and Fbook live from the venue!Tweet