I’ve just seen reporting of a study of people with type 1 diabetes that sums up everything that’s wrong about medicine’s attitudes and views of type 1 diabetes.
Dr Jenise C. Wong M.D. PhD, from the University of Californa surveyed people with type 1 diabetes about whether they downloaded data from their meters, pumps and/or CGMs. In what comes as no surprise to me, “only” 30% download their data and “only” 12% regularly review the data.
“People with type 1 diabetes really are not reviewing their device data at home. … The reasons why they don’t seem to be doing this is that they lack guidance and they lack motivation and it also may be because the data may be really hard to get,”
Ok, so roughly translated that is saying we’re too stupid and/or too lazy to download and review our diabetes data.
You could give up reading here and dismiss t1 diabetics as the lazy slackers “every” health professional knows they are BUT you’d miss the best bit
Dr Wong comes out with the bland statement
“Yet, after adjusting for confounding factors, “for those who even do frequently review their data, they did not have better glucose control, which we measured by HbA1c.”
Hang on a minute, so medical science is reporting and an endocrinologist is trumpeting that type 1 diabetics lack the(necessary) skills and motivation to regularly undertake a task that has been shown by the study they’re reporting, to be OF ABSOLUTELY NO BENEFIT. It makes my head spin.
The results of this study, instead of demonstrating a deficiency in diabetes self-management, show that people with type 1 diabetes are making informed (by experience and now backed up by quantative data) decisions about their self-management.
People with diabetes deserve better than this from medical science and endocrinology in particular.
Quotes from Dr Wong via http://www.healio.com/endocrinology/diabetes-education/news/online/%7Bd0093b8f-3d4b-4723-bbb8-98885171892e%7D/most-patients-with-type-1-diabetes-do-not-download-review-glucose-data last accessed 23 June 2014 The study is also reported by Medscape (free rego required) http://www.medscape.com/viewarticle/827172Tweet